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Soap Star Brings Struggles with Disability to Life On-Screen

Looking back on his childhood, JR Martinez fondly remembers his mother watching the daytime soap opera All My Children as a way to help her learn English. “Because my mother is from El Salvador…when she was pregnant with me, she would watch All My Children and that would be kind of her English 101," Martinez said.Read more

The Big Feel - Redefining The Way We Feel Sex

By Freelance Writer

When it comes to feeling like a competent sexual being, it can be a rocky ride if you have a neurological disability (SCI, MS, MD, etc). Sensations, orgasms, the body’s sexual response…it’s all a learning curve (but not a lost cause) with a damaged nervous system.

And since the nervous system is still the veritable “flat earth” in the world of medicine, a world which offers not a single cure to fix damaged nerves, people suffering from these conditions have been forced to get mentally creative. And can you blame them? So a doctor says he can’t cure you; I don’t care how severe your disability IS, no human who still has a shred of hope left will completely give up on enjoying sex even if they can’t feel their genitals/body in the same way.

 
Emergency Preparedness for Special Needs Populations

Held in New York City

In the wake of the 9/11 terrorist attacks, the mainstream media scarcely noted the quiet but heroic efforts of hundreds of home care providers who crossed police cordons in downtown Manhattan to tend the survival needs of thousands of persons with special needs. Also largely hidden from public view were the undaunted efforts of home care providers, social workers, and volunteers who unflaggingly searched for and aided many more thousands of families and individuals with special needs in the aftermath of the recent Midwest floods, the California Wildfires, and numerous other disasters.

 
Teaching the Teachers

Teaching the Teachers: IDEA and Modifications to Classroom Environments for Students With Disabilities

By Martin Jauregui, Freelance Writer

When the Individuals with Disabilities Education Act (IDEA) appeared in its present form in 1990, its purpose was to address the educational needs of children with disabilities. The act asked for one thing on the part of children with disabilities: that they be provided with a free and appropriate public education. The act has gone through several reauthorizations since 1990, with the latest one taking place in 2004. Included in the act was the general alignment of IDEA with No Child Left Behind. Under the new version of the IDEA, the term "highly qualified", which is used to describe a teacher's certification and status, is now taken to mean the same thing under both IDEA and NCLB. Additionally, the new version of the IDEA prevents schools and school districts from being held in violation of the act if the parent of a child fails to or refuses to give consent for an evaluation of a child. Changes were also made to the act's reevaluation procedures, IEP procedures, as well as changes to procedures regarding the discipline of students with disabilities.

In 2006, the National Center for Learning Disabilities reported that more than 6 million students with disabilities receive help directly from the IDEA. Before the act made its original appearance in 1975 as the Education for All Handicapped Children Act (EAHCA), only about twenty percent of children with disabilities were educated by U.S. public schools. In most cases, children with severe disabilities like blindness or mental retardation were denied access to the public education system. Instead of allowing them to participate in the traditional education system, most schools resorted to covering the costs of placing these children in state run institutions where they were neither educated nor rehabilitated.

Today, when a student with a physical or mental disability enters into a regular education classroom, it becomes the teacher's responsibility to become educated about the disability and determine the methods that will be employed in order to provide the student with an education that under the eyes of the law is considered adequate and appropriate. In most situations, teachers will have to make certain modifications to their classrooms in order to ensure that they comply with the requirements set forth by the IDEA as well as the ADA.

Students in wheelchairs or with mobility issues may have trouble getting from one class to another within the allotted amount of time. In these situations, it is important for the teacher to consider allowing the student to leave the classroom a few minutes early in order for them to arrive at their next class on time. Administrators may also consider modifying the student's schedule, perhaps by placing the student in classrooms that are closer to each other in order to minimize the amount of traveling the student has to do.

Unscheduled breaks may also be a required modification for disabled students. Time to rest, visit the restroom or take special medication should be permitted, even if the events take place when the student is in class. If these non-traditional breaks have to take place during classroom time, it is important that they be done during a time that will minimally affect the student's instructional time.

Certain changes to the classroom environment may also need to be made. Desks might have to be rearranged, or seating charts may need to be altered in order to allow a student with a disability to successfully maneuver through and around the classroom. When it comes to emergency drills, the teacher may also want to consider the location of a disabled child's seat in order to ensure that he or she can safely make it out of the classroom when one of these drills takes place. A student might also be assigned to make sure that the student with a physical disability can quickly and easily make it out of the classroom.

Students with disabilities might require some form of assistance or modification while at school, but it is important for school staff to allow these children to learn and function independently as much as possible. It is easy for a teacher or an aide to simply decide to do a task for a disabled student, but what good will that do for student? It might take student five minutes to put on a sweater or jacket, when an aide or teacher could do it in a few seconds, but the skill of being able to put on the coat or jacket is one that the student needs to eventually master.

You can read about the modifications at:

Teachers Helping Teachers

 
Travel and Recreation

Easy Travels; Service Dog and All

By Javier Robles

Traveling is one of my favorite things to do; it is also my least favorite. My wife, daughter, son and service dog concur with this statement. Mainly, because they have traveled with me and know I do not pack lightly; a short list includes:

  • One Power Wheelchair (300 Pounds)
  • Battery Charger
  • Cushions
  • Camera and lenses
  • Tripod
  • 14 catheter trays

This list is just the beginning and does not include clothes, shoes, lotions, potions, etc. I am “high maintenance” to say the least. Maybe I could leave the camera and case home now and then? Maybe? However, it is not traveling with things or people that make it hard on someone with a disability.

What makes it hard for someone with a disability to travel is the “human factor”, or sometimes a lack of humanity. People with disabilities who are unprepared to travel in today’s world better think twice before boarding.

The following have all occurred to my family and I while traveling:

  • ten-hour trip to Hawaii turned in to a huge pressure sore from extended seating.
  • Waited 6 hours for a ride from Miami Airport to South Beach, although it had been reserved and confirmed. Reason: We do not have a lift-equipped van available. To which I answer - No Shit!
  • Airport personnel while connecting my battery pack switched polarities and fried the wheelchair computer. What I said: Oh No! Where is that smoke coming from?
  • Power chair returned by airport personnel resembled molten metal artwork. What I said: What the f@#% $%&&* *(^##%.
  • While in Mexico we decided to see the sites, cruise bus style; not a good idea. I asked the tourist and my new bride to assist me (lift) out of my wheelchair, up the steps and into a seat. My pants dropped halfway to the seat (no underwear) with the whole bus watching. What they said: Oh My God!

The bottom line is that traveling can be a real test of patience for people with disabilities. Therefore, here is some helpful travel information from your friends at ThisAbled.com. Happy trails.

 

Air Travel

  • Inform the airline ahead of time that you will be traveling with a service animal.
  • Be on time. This usually means an hour and a half early for domestic flights and two hours for international ones. If transferring assistance will be needed always be early and alert the personnel at gate check-in.
  • Although not technically required, if you have a service animal identification card bring it with you.
  • If your dog wears a vest or harness have them dressed in it.
  • Walk your companion right before boarding if possible. Ask the airport security where you could walk your dog.
  • Do not provide your animal with too much water or food before the flight. It is sometimes better to feed them after the flight is over. The water intake before the flight should be very restricted; you do not want your dog to have an accident mid-flight (Yes, they have accidents too.)
  • During the security check be prepared to have your dog patted down by hand or scanned with an electronic wand. In addition, the dog may be walked through the same scanning machine used for humans. If the dogs’ uniform has pockets make sure they are free of dangerous or flammable materials, such as, knives, lighters, screwdrivers etc. These items will be confiscated and disposed of by security. See the TSA Permitted and Prohibited Items List
  • The person will also be screened by the security personnel and may be patted down, checked with handheld wand or both. The pat down is more likely to occur if the person uses a wheelchair. The person and chair may be swabbed for chemicals or explosives. This usually involves shoes or chair being swiped with a “gauze like” material that is then inserted into a machine that looks for these substances. See the DOT Fact Sheet
  • The service animal is expected to be under your control at all times. Do not allow it to roam freely anywhere in the plane or airport. Keep the animal from interacting with other passengers as this may cause them to be distracted.
  • To file a complaint against an Air Carrier just click and download the following application: the DOT PDF Form
  • Note: Always check that the place you are traveling to have similar laws to the United States when it regards service animals and your rights as handler. Many places have quarantine laws which require you to leave your dog for a certain period of time. This includes Hawaii in the United States.

Train Travel

Traveling with a service dog on a train can be a chaotic experience if one is not well prepared. If going from one city to another within the same State boundaries traveling with a service animal may not require much preparation. However, here are a few quick pointers:

Local Trains

  • Be on time. This usually means at least 45 minutes early when it comes to train travel.
  • Always ensure that the stations you are coming from and traveling to are accessible if you use a wheelchair, scooter or other mobility device. Calling the transportation provider ahead of time is suggested.
  • Be careful of raised platforms that require elevator access as elevators can break. This is especially important if your destination station has a malfunctioning or broken elevator. Nothing ruins your day faster than being stranded on a platform. One option is to get on the next train hop off at an accessible station and come back on a train to the station. You will want to insure that the elevator on the other side is working before your trip. Another, option is to call the local fire department and see if they can carry you and service dog to street level.
  • Tell the conductor exactly what you need in order to board the train with your dog. Under no circumstance may a train conductor deny a person with a disability access to a train because they use a service animal, such as a guide dog or service dog.
  • Watch The Gap! Sometimes when boarding a train you may encounter a gap between the train and platform. This gap can be extremely dangerous to service animals and their handlers. If you use a mobility device ask the conductor for a “Bridge Plate”, which fits in the gap between the platform and train. This plate will provide you and your dog a safe way onto the train.
  • Sit in an accessible train car that has space designated for wheelchair access. This allows more room for your dog. If the space is taken you may ask the conductor to clear the space for you.
  • If you are blind, visually impaired, deaf or hard of hearing you may want to advise the conductor what station you will be going to and weather they should alert you of arrival.

State-to-State Travel Via Train

A number of the suggestions made above apply on State-to-State travel as well as local. However, the time required on these trips is considerably longer and may require numerous other accommodations for you and your dog. Amtrak (www.amtrak.com) basically has a monopoly on this kind of travel in the United States. Therefore, our conversation will focus on them.

  • To make reservation on Amtrak you must call any of the following:
    Telephone 1-800-USA-RAIL or 1-800-872-7245
    TTD/TTY call 1-800-523-6590
    Note: Ask the booking Agent about the discount for passengers with disabilities and their travel companion (person not dog).
  • Reservations can be made up to 14 days in advance but can be booked with as little as 24 hour notice. If booking a sleeper car you will need to give as much notice as possible in order to assure a spot.
  • Let the booking agent you are traveling with a service animal and weather you will need “Red Cap” assistance with your luggage, chair or navigating the station.
  • In a post 911 world everyone needs some form of identification to travel intrastate, Amtrak is no exception. Besides your boarding pass the conductor may and probably will ask you for 2 forms of ID. Have them readily available.
  • Café Cars are usually your best bet if you are just traveling a few hours. Most provide wheelchair access and a table for computers, reading and yes eating.

Did You Know?

If you use your States Para-Transit service you may qualify to use a similar service at the State you will be visiting. This will more than likely require documentation from your current provider to the provider in the other state. The provider in the State you are visiting then will either approve you to be served or not. If approved, most offer only a limited amount of time, such as two or three weeks. Moreover, their States Para-transit rules may differ from your home State. For example, the window for waiting for a vehicle may be longer or the area “shadow route” may smaller. Call providers way ahead of time to insure satisfaction.

Tips for Traveling

  • Consider sending your medical or other supplies (in my wife’s case shoes) ahead of time through United States Postal Service (www.usps.gov ), United Parcel Service ( www.ups.com ) or Federal Express ( www.fedex.com ). Do not ship expensive or fragile medical equipment without proper packing and alerting the carrier.
  • Call the hotel to hold your items in a safe place and let them know when your shipment will arrive.
  • If you have medicine that needs refrigeration most hotels will provide a refrigerator free of charge. You should request it ahead of time if possible.
  • This tip is hit or miss. I have had a 50/50 success rate with it. If you need information about the area you are visiting call a local Independent Living Center. All have some sort of Information Department and most have people with disabilities as employees, who know the area.
  • Consider purchasing your dogs food at your final destination because dog food takes up space and is heavy.
  • If you can afford it, “tip well” or at least appropriately. Front line staff will always remember the person who stiffed them than who didn’t.
  • Always check for extremes in weather were you are headed. Especially, if it could affect your disability or your dog does not do well in it. August in Miami is brutal for people and dogs; but in may it is heavenly.

If you have problems at airport, hotel, or transportation provider let management know. Most importantly, have them document the problem; especially if it will involve reimbursement or credits towards future travel. If you’re lucky next time you will be traveling First Class.

 
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